I sit in front of her in the dark, me on the chair and her on the floor. She’s kneeling in front of me with tears in her eyes, telling me the story of one of her children. He is the fourth of seven and is moderately mentally retarded. In the mornings when he wakes up and goes outside his neighbors call him names and empty excrement from their chamber pots over his head. In the evenings when he lies down, the rain pours through the roof of their one-room home and makes it impossible to sleep. The neighbors believe that he has been cursed by God. But the tears in his mother’s eyes are not tears of hopelessness. They are tears of joy, joy because her son will soon be able to go to school, that despite her neighbors’ jeers her son will soon have a sense of purpose each day. Although her face has aged a little beyond its time, I have never seen one more beautiful.
On another day I am busy running from one room to another, finding materials to do assessments on the never-ending stream of students who hope to attend school. I’m impatient because the interpreter, an occupational therapist, is sitting on the steps talking with the mother of a child we’ve never seen before. As I approach to ask her to come, I realize that the mother is crying silently, shaking with unheard sobs. I go back to my classroom to wait.
When she joins me, the occupational therapist tells me that the woman is the mother of a child with severe health problems caused by a combination of malaria and cerebral palsy. Her son had become sick the night before, and when she tried to get out of bed to go and help him breathe her husband physically restrained her. Holding her roughly in place, he told her to let their child die. He told her that if she helps him, she will no longer have a home under his roof. And he told her that if she spends his money on their child, he will kill her. As her child’s breath rattled in his chest, she asked our occupational therapist for money for the doctor. We watch out the window as she leaves for the hospital, knowing that she faces the possibility of returning home that night to a place that will be locked, with her other five children inside.
I’ve been thinking a lot about dignity over the last few months. How is it ascribed, and by whom? Here in the government is preparing to host CHOGM, a meeting for the heads of many commonwealths around the world, in November. We hear quite a bit about the dignity of the Queen and all the things that the common people must do to prepare for her arrival. Preparations include packing the multitudes of homeless in into trucks and driving them several hours out of the city so that they won’t be around for the Queen’s arrival. The waters of will also be closed off for six weeks, which will inevitably lead to deaths amongst the fishing communities on the islands. What of their dignity?
In the face of so many grave situations, dignity may not seem like the most important thing to focus on. But through the last few months I have realized more than ever how personally God loves each of us. He is familiar with all of our ways. And in the midst of this familiarity, He cares about “big” things like poverty and pandemics as well as personal things like dignity. It’s easy for me to get overwhelmed with the injustice of people’s attitudes towards disabled children in , or the injustice of educational disparity in . But God is not overwhelmed. He has prepared good works in advance for us. These good works include for me an opportunity to lend dignity to the lives of the people I come into contact with, that in these brief interactions I can be used by the One who is mighty to save.
He raises the poor from the dust
and lifts the needy from the ash heap;
he seats them with princes
and has them inherit a throne of honor.
"For the foundations of the earth are the LORD's;
upon them he has set the world.
1 Samuel 2:7-9
Patricia is a seven year old girl. When Patricia was five she was diagnosed with cancer and her father abandoned the family. Patricia lived in the cancer ward at the local hospital for 6 months, and during that time watched many other children who lived around her die. After Patricia was released she was given the wrong combinations of medicine and had a stroke, which left her with right-side paralysis. Patricia’s cancer is now in remission and she is a very friendly little girl. She likes to play with babies, cuddle, and talk incessantly!
Peter is twelve and is one of seven children. His father passed away and so his mother is the sole provider for her children. Peter became mentally retarded due to epilepsy. He has been on seizure meds off and on for the last 8 years, but it has been difficult to find an effective dose and he is often extra sleepy or active because of his meds. He continues to have seizures off and on. Peter’s family lived in a one-room mud home which was very leaky until recently, when they were able to move to a better home due to a sponsorship. Peter’s neighbors believe that he is cursed because of his disability and frequently call him names and empty their chamber pots on him. Despite this, Peter is quite funny and enjoys life. He likes to build things with dirt and he also likes hoarding small things from our classroom in his pockets!
Sam is also twelve years old. Sam’s father is not around and his mother died last year, so he now lives with his older brother and sister. Sam’s family founded an orphanage and they care for around 40 orphans on their property. Sam has been mentally retarded from birth. Sam likes a lot of attention. If the teachers say, “Good job,” to someone, Sam always says, “Teacher, me!!” until they tell him the same thing. Sam has a low attention span and becomes easily frustrated. He enjoys playing with the other students and having someone’s undivided attention.
Shafik is a five year old boy who had malaria when he was two, which caused brain damage. He also suffers from seizures. He comes from a Muslim family. His father left when his disability was discovered. Shafik is a very affectionate boy. He loves to give hugs and he enjoys looking at books. He has never attended school before and is very proud to be in school now. Shafik’s seizures have recently been quite out of control; please pray for him.
Jackie is a 17-year-old girl with mental retardation. Jackie’s father also left their family when it was discovered that Jackie was disabled. Jackie used to be quite quiet and didn’t smile or interact with others often. However, since school began she has begun to be much more outgoing and speaks spontaneously more and more often! Although she has made very little academic progress, she is making lots of social progress. We have begun to teach her skills such as cooking and cleaning so that she will be able to function better in everyday life. She enjoys attention and hugs.
Katamba is an eight-year-old boy from a Muslim family. Katamba’s mother left when she discovered that he had a disability, so Katamba lives with his grandmother and his father occasionally visits. Katamba has a very severe speech problem. However, his brain function is normal and he is quite intelligent. Katamba was not allowed to attend school because of his lack of speech—it was assumed that he was mentally retarded. However, he is quickly learning his letters and numbers and enjoys showing off his knowledge to anyone nearby!
Cedric is a five-year-old boy who shows all the classic symptoms of autism. At around age two he began to lose his speech and disengage himself from those around him. His parents took him to doctors who first diagnosed him as having malaria and then gave him a diagnosis of tuberculosis. Cedric is a part of a loving family and they are very patient with him. He doesn’t speak but sometimes communicates his needs by pulling an adult by the hand. He loves to play in water and jump from the top of the jungle gym into someone’s arms.
Lawrence is a bundle of energy. His age is uncertain but I guess he is about nine or ten. He is very big and strong! Lawrence’s mother left the family when became sick with malaria. The illness left severely mentally retarded. He doesn’t speak but sometimes follows simple directions. He likes to play with balls and listen to music. He eats everything that he comes in contact with and enjoys roughhousing.
Hamza is a big 4-year-old boy with Prader-Willi Syndrome. He is mentally retarded and feels the need to eat constantly. He is quite difficult to work with because of his preoccupation with food. He becomes very upset unless he is eating. When he was a baby, Hamza’s mother died and he was left to live with his father. His father remarried and his new stepmother left Hamza tied in a corner and didn’t feed him at all. He was close to starvation when neighbors intervened and Hamza was sent to live at a home for street children. Unfortunately the new home was also ill-equipped to handle Hamza’s problems and he spent the majority of his days tied inside of a crib. Hamza has since returned home. Please pray that his family will be able to care for him! Hamza is affectionate and likes hugs.
Dalton is a four-year-old boy who was born 2.5 months prematurely in the UK to a Ugandan mother, who soon returned to Uganda. He was close to death and remained in the hospital for several months after that. He is mentally retarded and has a lot of sensory-related issues. He also has severely impaired vision. has trouble adjusting to new places and often as temper tantrums. However, he enjoys playing with dirt and water and likes to cuddle.
Sekajjugo Peter is ten years old. He has right-side hemiplegia and a speech problem. Sekajjugo is the last born in a family of four, and lives with his mother, a bar attendant, and his father, a driver. Sekajjugo used to go to a regular school but he was harassed by students and beaten by the teacher because of his speech problems. Sekajjugo became so afraid to go to school that he ran away from home repeatedly. Sekajjugo is making great progress at Mukisa and his speech problems have decreased now that he feels safe. We hope that through some gentle care, Sekajjugo will catch up with his peers and be able to return to a more supportive regular school.
Treasure is a nine-year-old boy with Down's syndrome. Before Treasure came to Mukisa, his family and teachers did not know that he was disabled. They thought he was just a lazy student. However, now that his mother is aware of Treasure's difficulties she is able to support his learning in new ways. Treasure is learning basic academic skills at Mukisa as well as self-help skills like getting dressed and brushing his teeth.
The following items would be extremely beneficial to Mukisa School:
The items above are educational materials that are not widely available in Uganda. Please include ONLY these items when donating to Mukisa School, as other items may not be necessary and will be expensive to transport to Uganda. Any donations you make will be greatly appreciated and used to their fullest extent. Our greatest needs continue to be prayer and financial support. If you are interested in doing a class fundraiser, making a donation, or hosting a presentation about Mukisa School at your place of worship or other relevant group setting, please contact us at friendsofmukisa@gmail.com to make arrangements.
Mukisa School is a Christian school in Kampala, Uganda for children with disabilities. It was founded in September 2007 and there are currently fourteen students in the Mukisa School program, with more on the waiting list.
In Uganda, families of children with disabilities are greatly stigmatized by society. It is often believed that children with disabilities are cursed, and mothers and their children are often abandoned by family members and left to fend for themselves. Mukisa, which means "blessing" in the local language, was established to give hope and tangible support to those who are overlooked within their society.
There are many ways to support Mukisa School. If you are interested, please email us at friendsofmukisa@gmail.com. Join us in an effort to help restore dignity to those who are in need.
In partnership with Mukisa School, students from the Richard Allen Preparatory Charter School in Southwest Philadelphia have created a mini-documentary about Mukisa School. To view it, visit www.mindtv.org and search for "Mukisa". Enjoy!