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About Cystic Fibrosis

What You Need to Know

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Symptoms of Cystic Fibrosis

People with CF can have a variety of symptoms, including:

Statistics

The Cystic Fibrosis Foundation

Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters--patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.


Pictures

2009-05-18

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These pictures were taken at this years Cystic Fibrosis Walk in West Liberty. We had 23 people on our team Keeper Of The Stars.

Doug and Misty

The pictures that are shown above are the ones I took at their Wedding.

 

Cystic fibrosis claims life of youth minister

Assistant youth pastor at Bethel Community Church of the Nazarene lost his wife to the same condition.

 

By Samantha Sommer

Staff Writer

Thursday, September 06, 2007

Despite his few years, Douglas Langstaff knew a lot about life.

"He told everyone he knew to always tell everyone you care about that you love them because you never knew when that might be the last time you would see them," friend Erin Mills said.

Extras

Photos

Langstaff, of Fairborn, died Sunday from cystic fibrosis. He was 21.

His 18-year-old wife, Misty Langstaff, also had cystic fibrosis and died in May a month and a day after their marriage.

She is buried in Ferncliff Cemetery, as will be her husband.

Douglas Langstaff was creative, fun-loving, humorous and never complained about his illness, said Rev. Rick Fiste of Bethel Community Church of the Nazarene in Medway.

"He was a good example of how to overcome adversity," Fiste said.

Douglas Langstaff attended Mount Vernon Nazarene University and served as an assistant youth pastor at Bethel Community Church.

He was called to the ministry as a teen, the Rev. Todd Edwards, youth pastor, said.

"He had an intense love for God, an intense desire to strengthen his relationship with God and help others find God," Edwards said.

Douglas and Misty Langstaff had a magical relationship, Edwards said.

"It kind of sounds corny, but they really only had eyes for each other," he said.

The couple met during a hospital stay.

When Misty Langstaff died, her husband made it his goal to finish arranging their apartment, said Mills.

That included making a wood-and-glass case to display items from his wife, and sister-in-law and mother-in-law who had passed away earlier.

"He had the best attitude of anyone I've ever met and lived every day to the fullest," Mills said.

 
 
 
 
On April 14, 2007, Bethel soundman Doug Langstaff stepped out of the sound booth for a special ceremony to marry his love, Misty Rose. Doug and Misty met at Children's Hospital in August 2005, where they were both undergoing "tune-ups" for a disease affecting their lungs, cystic fibrosis. With the hospital playroom as his stage, Doug asked Misty to be his girlfriend. The hospital was also the spot for celebrating two Valentine's Days.

Last fall, Doug took Misty to Glen Helen State Park to walk the trails. When he found a spot overlooking a waterfall, he gave her a special fortune cookie with the question inside, "Will you marry me?"

During their marriage they had two really good days. One day she was able to cook and clean the dishes. The other day they were able to go see a movie.

On May 15th, Misty was set free from cystic fibrosis to join her mother and sister already waiting for her in heaven. Misty's sister, also afflicted with cystic fibrosis, passed away last summer.

Doug says, "Although we only had a month and a day, we lived it as if we were married for 50 years."

Breathing is no longer a struggle. We can only imagine Misty's joy in taking full, deep breaths!

Pictures

2009-04-17

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Jacob

The film strip of photos that you see is of a sweet boy names Jacob. His mom is one of my friends Melissa I met her back in 2002. She also has a daugther named Shelby.

Update on our Cystic Fibrosis Walk

Cystic Fibrosis Walk

Personal Image C.F. TOTALLY SUCKS!!!! : - (

This is my second year Walking for Doug, Misty and Danielle. Last year I had a lot of Fun! I turly hope that we beat what we raised last year which was a little over $1,800.00.

Yesterday Feb 12th. A young lady named Ashley was set free of C. F. she was only 15 yrs old. Even though I never had the pleasure of meeting her but I know people that loved her very much. This is why we really need to find a cure so we can make sure that others that are so young can live a long heathy life. She knew Danielle, Doug and Misty they were together when they were in the Hosptial. She loved Danielle, Doug and Misty was if they were part of her family. She will be missed by a lot of people. RIP Ashley so this years walk is also for you sweet Ashley along with others that we have lost.

 

We really need your help to raise money. Thank you to everyone who takes the time to look at this webpage. God bless


Date of The C.F. Walk

This is the date for this years CF Walk it will be on May 15th in West Liberty, Ohio. You can go to http://www.cff.org/Great_Strides/ to Register.


A Little About Great Strides

GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, I'm walking in the GREAT STRIDES walk at the 2009 walk in West Liberty, Ohio. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.

Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!

Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.

Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!


Walkers page to Donate

Tonya Lindsey
Shannon Lindsey
Esther Ott
Mandie Kuhn

Family & friends

TONYA L
Bev L
Mandie K

Guestbook

Favorite sites

Cystic Fibrosis Foundation - Home

Calendar

Message board

Money Raised
Just wanted to put on here that we Raised 635.00 this year for the C.F. Walk that we did back in May. I hope that next year we can raise more money. I miss my 2 best friends more and more everyday.
Im walking...
Im doing the CF walk for Doug, Misty, Danielle,and all the others that are suffering with CF!
Please post here for the one you are walking for
I'll start.....I'm walking for Doug, Misty and Danielle.Personal Image

 

 

 

People We Miss

Hi everyone I set up this site for anyone who had lost a loved one to Cystic Fibrosis. So I hope you will enjoy it. Please send me photos so I can add them on here. Thanks for taking the time to look. God bless you all.

Videos


Doug & Misty Langstaff
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Mercy Me - Homesick (Live)
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Westlife - Unbreakable
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Casting Crowns-"Praise You In This Storm" (live)
Casting Crown-"Praise You In This Storm" (live)

Switchfoot Stars Soundcheck
Switchfoot preforms Stars on Wal-mart Soundcheck

Disciple - Things Left Unsaid

Find Your Wings - Mark Harris

The Motions music video
The music video -Matthew's first!- created for the hit song "The Motions" from the CD Something to Say.

Avalon - Testify to Love (Live at CeCe's Place)

Kutless - Strong Tower

Big Dismal - Just The Same

Related Pages

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1/30/2012 12:30:50 PM