Meet our girls Mia and Maya. They were born at 2:59pm on July 14, 2009. At just 24 weeks gestational age they were a whole 16 weeks premature. Maya was just 1 lb 3 oz and Mia was just a tiny 15 oz. It was twin to twin tranfusion syndrome, which is fairly common in identical twins. They shared a blood vessel in the placenta they wern't to share giving one baby too much of everything and depriving the other making it dangerous for both for many reasons.
We were told not to expect them to make it through the night. They had a long fighting battle in their first months of life but not only survived but have thrived in spite of virus, infections, surgeries and more. They were fighters from the start but look how beautiful and amazing they are. Glory be to God!
Mia's left eye had now developed Glaucoma. Rare in children and babies and due to her extreme prematurity and low birth weight of 15 oz. On October 14 we were in Miami where Mia was getting and eye examination under anesthesia to confirm what were suspected. Her eye pressure was up at a routine visit and we were rushed to Miami that week. She had surgery and they drained her eye pressure but she may need and eye shunt in her other eye and that will be determined with this next trip. Obviously something we couldn't plan nor expect.
A friend of ours set up a fundraiser for our girls and to help cover the cost of this next road trip where we need to rent a mini van and cover gas and food expense and the hotel room. Not a pleasurable trip but we make the best of it.
With the holidays coming up the products from Scentsy make a great gift or you can keep for yourself. If you would like to help out just know that 25% of the purchase go towards the girls. I will post the link here and please feel free to pass it along to friends, family, and share on twitter and facebook.
Besitos to you,
The Perez Family
We started taking advantage of Buddy Break late last year. Nathaniel's Hope offers families who have children with special needs a break for a few hours and we get to do fun things together, or serious things that we have to handle during that time! Check out the video below from when we were featured on the news clip talking about buddy break!
Ahhh to be a working mom! I'm just part time at the radio station, but I wish my complaints could be about simply being busy. Be grateful for your healthy children. I'm fortunate to have had at least experienced some normalcy with Melinda's pregnancy, birth, and toddler years.
I met a mom last week who had twins and she said some things I remember feeling. She too had had her boys early at 26 weeks. She told me she wished she would of experienced some cool things like a babyshower, having the nursery ready before they were born, and even bringing them home a day or 2 after being born but they also spent months in the nicu. It's the little things like that that makes the joys of mommyhood a treat!
Now I just wish things would be a little normal, not easy, because being a mommy isn't easy but having children with special needs feels abnormal. We need 36 hours in our day lol. We can write a comedy about the crazy stuff that happens to us, however, none of it is actually funny. So that would flop!
Overall I know our life is blessed because their smiles are proof that we are doing a great job! I know God Picked us to be their parents and it's a privilege!!! I'm honored!
Sometimes I wish we didn't have to deal with all the extra because I miss having a clean house! So if you come over and the house is a little messy or a lot, don't judge. If you don't walk in our shoes then maybe you can come over and help us put them away, because I'm tired of tripping over them.
Besitos to you!
Hi, it's been a while! Everyone stops us at the mall and says, you have your hands full! Duh! I love when they say, double trouble, I say no double the love! Shuts them right up!
Anyway, just wanted to share a link. Someone shared this great website with us when I mention we were trying to save for Mia's new glasses. I plan to use it when I start my non profit but since that's a ways away I decided (humbly) to try it out and see if we can raise some bucks for Mia's new much needed glasses.
For family and friends please instead of Christmas presents for the girls consider a small donation to help us get to our goal. It's been over 6 months since we received her new eye prescription and need to come up with half to just order the glasses. The glasses aren't covered my insurance or medicaid for they are special glasses. It's actually the lense with the strong power. This lenses due to her cataracs being removed. A layer of her natural eye lense was removed and one day she will get an artificial lense in her eye, in the meantime these special glasses will play the part of her missing lense.
Needless to say, with all going on we havn't had a dime go towards this due to other obligations and care needs for the girls! Please check out the link and at least try to forward to information to anyone who's willing to help! Thank you!
I think of how advanced Melinda was. She was holding her head up from DAY 1!!! Melinda was an amazing baby! She was months ahead of her time so it's strange seeing the girls months behind. I'm ok with it though. It's not a bother, struggle, or a worry. I understand the delays they will have. I understand it's going to take them a bit more time.
So we wanted to be sure everything is on track with Mia especially. We didn't want any surprises. But everything we figured was the issue, was the issue. The diagnose was due to her extreme prematurity, her hearing loss and her vision problems. It was also re-confirmed that she has Torticollis. She favors and leans to one side. It's a muscle spasm thing. We were told with therapy this goes away. I recently met yet another mom with twins, a boy and a girl and and her daughter 1 lb at birth also had physical therapy to correct this and I seen her playing she's done great and has out grown it. So we are enthused at what God has shown us.
The Dr. was pleased with what he has seen in Mia. He didn't see any signs of Cerabal Palsey which is a concern for the girls since they are so premature. Although he said she is too young to tell and you usually see it within the first couple of years, he says he's done it long enough to be able to tell at this age and Mia doesn't concern him in the least. Especially considering her age and size at birth. He was impressed with her. He likes her muscle control, her responses to the different test, and she has good reflex.
So the next step is to get blood work and an X-ray of her spine. To check for some possible hereditary diseases. Just to rule them out. So overall it was great news.
It's a milestone kind of day :) As you read in the tittle, it was a year ago since I took my home pregnancy test. Little did I know at the time I would only enjoy my pregnancy for about another 16 weeks. I was already 8 weeks along at the time my pregnancy was confirmed. We were so excited. At the time we didn't know it was twins. We found that out about 8 weeks later.
It was a sad thing for me when my pregnancy was cut short. Why me? I loved being pregnant. They're women who hate being pregnant. Not I. I was fortunate to always feel good during my pregnancy. I had moments. Moods and stuff but I wasn't miserable. Wasn't scared of labor. Never had morning sickness, I felt strong. I was walking and had great energy most of the day. It felt unfair that I would have my babies ripped from my body and I wasn't even allowed to hold them for months! But thank God they are even here! It's a miracle. Truly! It's hard to say i all I went through was worth it. What I went through was worse than labor. Nobody should go through this. Although my babies are here, we experienced a loss. It's unexplainable. I can't imagine what losing them would of done to us. My heart aches when I hear someone has lost their child. I can't imagine facing that monster.
BUT today the girls turned 8 months old! AMAZING. They are turning a year in 4 short months. I remember the hope I felt when they turned a month. It didn't feel safe yet. Neither did 2 or 3. Finally at 4 I began to felt releif. When they were finally being released from the NICU. 8 months today, Wow!
She did so good at the Eye Dr. today! I'm so proud of her! I thought she was going to fight up a storm in there. But no. She surprised us all. They just popped those lenses in her eyes like nothing. And she just blink a few times and saw the world again for the first time! She can wear them up to 3 days and yes she can sleep in them. Everyone is always surprised when we mention the contacts. So were we at first. It is amazing. They are smaller of course. I was misinformed. I first heard they were even bigger than the ones I would wear. I was first told that they were bigger to wrap around the eye more so they wouldn't move around. Not sure who actually told me that. I thought it was someone at the eye Dr. but we can't recall. Maybe they are different types, but hers are small. Harder in the middle so they don't flip easily.
Anyhow this will be my job since I'm the contact pro in our home. I can't wait to take them out for the first time. I will probably catch it on video for you. Been wearing them for almost 20 years now. And I didn't expect a day like this until she was a teen. Talk about a fast forward. I had a whole conversation in my head with her. I asked her how does it feel Mia? Can you see me? Daddy? And I told her to look around. Her looks said it all. She squinted her eyes, her eyebrows followed, and she just had this look. She looked, at me, she looked up and around. I felt so happy for her because I was reminded of how I feel when I get new contacts or glasses, how good it feels to see again with fresh eyes.
We were so excited we decided to eat out with the girls for the first time and we took the girls to Cici's Pizza. Yes we were big pimpin at the pizza place! lol It was nice to eat out again as a family. Especially with the two new additions. Even if Cici's is not usually our first choice. I know this is a place we very well may have to get used to.
We also breifly stopped by the radio station today so friends from work can meet them. It was unplanned and great to finally share them with people other than family and those at the Dr.'s office.
For those who may be confused, yes I did lose my full time job at Mix 105.1. However they were kind enough to keep me part time in the company and I've been doing some work back at 102 Jamz. Catch me on all this weekend. If not you may hear me sooner or later.
It was a big day for us and the girls. Moments like this are unforgetable and very appreciated after all we have been through as a family. It was one of those..."It's the little things" moments.
Today was a great milestone for the girls. It's a blessing to be able to share this with you. They were taken off of their heart monitors and oxygen today. They were off it in the day, but were required to wear them at night. Mia was on oxygen at night only. Maya was taken completely off of oxygen last month so it was great to finally have Mia off and be free from all the wires and hook ups on the girls.
There's nothing like holding them without checking for wires. Moving freely with them has been great! Not carrying or packing the monitor and oxygen tanks has been the best part. Now I can bathe them without taking off the straps, just their clothes. It was such a sucky reminder of their rough start in life. But God is good and he has shown us once again that completely relying on him works. It's part of his principles. It's his law. Like the law of gravity. If you drop something it will fall. If you will have faith, simply believe, your prayers will be answered too. It takes true faith and trust in him. Not always easy to grasp. But we were forced.
This was hard for us to do at times. But deep down we know our God and we knew that the girls would be ok. Thanks to everyone who believed along with us and never doubted, and prayed with us. Many were praying for us, all around the country and even in other countries. No matter how many good friends and family were there for us we have felt more alone at times because this was such a unique situation. It was over 3 months of suffering. My heart was drained. We were both in survival mode where we just, breathed, ate and slept to survive. Basically what the girls were doing. They gained strength from us, and us from them. Our love, their love, Gods love got us all through it.
Please share this website with other families that have gone or are going through this. Send the link to other families in the NICU so they may gain hope. We didn't have anyone to look up to. We didn't have any solid verbal hope until towards the end. It was all a faith/guessing game from the beggining. No one can know how difficult that is unless you go through it. That has always sounded like something people say, but it's true. So is the saying taking things day by day. That has never been more real to us. Imagine that now, hour by hour, minute by minute, second by second...that's how we lived. You probably still don't get it. You may think you do. But you don't, unless your faced with it. We have made amazing progress. We know we are blessed. We know the girls have a purpose. We have a purpose. God's plan has yet to be revealed! All I know is that I trust him. I told him that everyday in the NICU.
I plan to use this site, to share their story, their pictures, their victory! I will share about the good days and the bad. I hope you continue to visit the site and support Mia and Maya's journey as they grow up and become even stronger and healthier. This is what we've believed for and we are sticking to it!
|THIS IS HEART BREAKING MAMA|
THIS IS HEARTBREAKING....
--- On Tue, 3/2/10, LizzettePerez <firstname.lastname@example.org> wrote:
I was told today of twins that didn't make it. They too were at the 24 week mark. Who knew that carrying multiples was such a delicate and dangerous task. Not I. Not before I experienced it myself. Although I don't know their names, my heart goes out to that family and any family that has been through such a loss. I can't imagine. Even with all we've been through. What a blessing for us to still have our girls here. What a gift. I hope that family has the love and support to help them through this difficult time. I also hope they will find peace and comfort through the power of the holy spirit.
I remember one of the girls first Dr. visits. We ran into a family at the Dr.'s office who had triplets, oh so it appeared. Being it was one of our first outings with the twins, my first thought after settling in was "They stole our thunder"! Lol. All kidding aside, once everone was settled into the waiting room we started talking with the family. I started the conversation by saying congratulations, because those never end when your carrying multiples around and they are still small in their infant seats. The mom, said thank you and she immediately said, they are not triplets, they were quads, we lost one. Ughhhhh!!!!! My heart just stopped right there. Most people may think, well, it was meant to be. At least they took home three... WHAT A STUPID THING TO THINK!
The fact that she pointed that out so immediately, wasn't to impress me with how many babies she had. It had to do with the loss she felt. The incomplete, empty, void. The kind we were familiar with in the nicu. We have our happy ending. They are home, and we continue to pray and believe for their health. It was day by day, minute to minute second by second in the nicu. Those ranking are kicked back down to just the day by day thank God! The toll this took on my family. Finacially, emotianally physically. The strain was almost unbearable. But we are all still here fighting. The girls are still fighting, and we are in love with them!
I can't wait until the first 2 years pass. I am trying to enjoy them small. I just want them big already. I can't explain it. It is different that when we brought Melinda home. The nicu trained us to feed them put them down let them rest. Having such little interaction with them from birth, we have had to make a point to interact with them now constantly since they are home and stronger. Just one of the examples of how weird this has all been for us.
Sometime in the near future, once we have settled in a bit more with the girls, I plan to volunteer at the Ronald Mc Donald house. During our stay there different companies, churches and just everyday people cooked meals for the families staying there. If you are interested in getting together and do a pot luck or cater some food for the families please let me know.
Also did you know you can collect the pop tabs off of soda cans and donate them to the Ronald Mc Donald house? They have collected billions of the pop tabs, literally tons, and had them recycled and have paid for many expenses to run the RMDH. It cost $60 bucks to have a family stay in a room per night. They do not charge this. They ask the families for a $15 dollar donation if they can do it. They do not turn anyone away but they do ask for a donation. We stood there for a great amount of time over the 3 1/2 months the girls were in the hospital. Sometimes weeks at a time. We actually paid almost every night we were there. You can also make donations and pay at least $15 bucks to sponsor a families night stay. No one actually did for us but it would of been nice and very much needed.
For us, it was basically a place to stay near the hospital. Kinda like a hotel. We had no concept what that charity was really about. We had some misconseptions.
So drop some change in that little box the next time your at Mc Donalds. Pay attention in the drive through as well. Most Mc Donalds have a little red box right under the drive through window where you can drop in some change, just like when your at a toll. This charity was a great blessing in our life. We will forever be grateful.
October 23, 2009 just 6 days before going home. Here we are hanging out with the girls in the Nicu. Watch how good Daddy swaddles the girls. Still, till this day, he does a better job wrapping them up than I do. He has to put them down at night because of it. If not Mommy's in trouble :)
Please continue to visit our site from time to time. We will have new content up on a weekly basis. Sometimes daily. Please join so you can get instant emails when we add new stuff so you don't miss a beat on the girls and what's new with us!